Debra of America

Founded more than 30 years ago, DebRA of America is the only national non-profit organization dedicated to research and providing supportive services to Epidermolysis Bullosa patients and their families. There is no cure for Epidermolysis Bullosa and the only treatment is daily wound care, bandaging and pain management. DebRA’s programs and services include an EB Nurse Educator, Family Crisis Fund, Wound Care Clearing House, and a New Family Advocate Program.

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Proceeds benefit Dystrophic Epidermolysis Bullosa Research Association of America (DebRA), the only national non-profit organization that funds research and provides direct services for patients and families suffering with Epidermolysis Bullosa (EB), a debilitating genetic skin disease that is present in 1 out of every 50,000 live births. 

We need committed and diligent volunteers to help with various aspects of the event including registration, auction set-up, greeters, raffle ticket sales and various other assignments. You can sign up for a morning, afternoon or evening shift or support us throughout the entire day. All volunteers MUST attend one orientation meeting prior to the event. Previous experience in supporting premier event staff is a plus!

Volunteers are key to making the event memorable and running smoothly. It will be a fun day and there are plenty of things to do.   

If you are interested, please email Ro-Ann Rabanillo at RRABANILLO(at)DEBRA.ORG . You must be at least 18 years old to volunteer at this event.

We would love to have you join our volunteer team!