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FRAXA Research Foundation, Inc.
Basic Information
Address: 45 Pleasant St., Newburyport, MA -01950
Phone Number: 978-462-1866
Fax Number: 1-978-463-9985
Email: info@fraxa.org
Action Shots
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Additional Information
Executive Director: Sasa Zorovic
President: Katherine Clapp
Service Description: We fund research on Fragile X Syndrome and also help raise awareness.
Mission Statement:
FRAXA"s mission is to find effective treatments and a cure for all children and adults with Fragile X.
Membership Fee: $25
Eligibility Requirements: no requirements
Area Served: National
Hours of Operation/Schedule: 9am to 3pm
Services Offered:
We send informational packets and offer specific books through our website.
We send informational packets and offer specific books through our website.
Events:
We have many events through out the year. They are listed on our website.
Fundraisers: You will find alisting of our upcoming fundraisers posted on the website.
Support Groups: We have support groups in most states. You can find this listing
on our website.
History:
FRAXA was founded in 1994 by three parents of children affected by Fragile X Syndrome, FRAXA funds medical research on Fragile X at universities around the world. FRAXA is a national non-profit, tax-exempt organization.
Detailed Organization Information:
FRAXA has funded over $17,000,000 in research, yielding discoveries which may soon improve the lives of all families struggling with Fragile X -- and possible autism as well. FRAXA is one of the most efficient charities in the world, with management and general expenses under 7%.